For Your Patients
CF Living
Genentech is dedicated to helping support health care professionals and their patients who are living with cystic fibrosis. As such, we are pleased to let everyone know about CF Living—a new program launching in late February that is specifically designed to help educate patients and their families about cystic fibrosis, treatment options and ways to stay active in their care.
To become a participant in CF Living, patients and their caregivers will simply visit www.cfliving.com or the corresponding section on this website and complete a brief online form with questions pertaining to their condition and treatment regimen.
Once enrolled, participants receive a CF Care Team Discussion Guide based on the information they provide us. This Guide offers suggested questions for enrollees to ask their health care professionals and other members of their CF Care Team—so they can learn more about their disease, therapy and the importance of adhering to their treatment plan.
In addition to the CF Care Team Discussion Guide, enrollees will also receive a series of educational e-mails featuring detailed information about cystic fibrosis, along with supportive lifestyle information and links to useful resources.
CF Living is a valuable educational program for patients with cystic fibrosis. With this in mind, health care professionals may find it useful to share this information with other colleagues who also care for people with cystic fibrosis. Take a few minutes to visit www.cfliving.com or the corresponding section on this website to learn more about the program and how much patients can benefit from all that it has to offer.
Links to key web sites for you and your patients
Genentech does not recommend and does not endorse the content on any third-party Web sites. Genentech is not responsible for the content of linked third-party sites and does not make any representations regarding their content or accuracy. Your use of third-party Web sites is at your own risk and subject to the terms and conditions of use for such sites.
- About.com Cystic Fibrosis www.rarediseases.about.com/cs/cysticfibrosis/
- Boomer Esiason Foundation www.esiason.org
- Cystic Fibrosis Center at Stanford cfcenter.stanford.edu
- Cystic Fibrosis Foundation www.cff.org
- Cystic Fibrosis Information – NCBI www.ncbi.nlm.nih.gov/disease/CF.html
- Cystic Fibrosis Mutation Database and Genetics Resources www.genet.sickkids.on.ca
- Cystic Fibrosis Research, Inc. www.cfri.org
- Cystic Fibrosis Resources for Daily Living and Information www.cysticfibrosis.com
- Cystic Fibrosis Services Pharmacy www.cfservicespharmacy.com
- Cystic Fibrosis Worldwide www.iacfa.org
- Cystic-L: Cystic Fibrosis Information and Support www.cystic-l.org
- Doctor's Guide to the Internet: Cystic Fibrosis www.pslgroup.com/cf.htm
- International Cystic Fibrosis Support Group at Connecticut College cf.conncoll.edu
- MEDLINEplus: Cystic Fibrosis www.nlm.nih.gov/medlineplus/cysticfibrosis.html
